Data

Data

BORN Ontario is a Prescribed Registry under Ontario’s Personal Health Information Protection Act, 2004 (PHIPA). This status allows BORN to collect, use and disclose Personal Health Information (PHI) for purposes of facilitating or improving the provision of healthcare.

Since April 2012, data has been collected from a number of sources including:

  • Fertility clinics
  • Prenatal screening laboratories
  • Specialized antenatal clinics (information about fetal anomalies)
  • Hospitals (pregnancy, labour, birth, and early newborn care information including NICU/SCN admissions)
  • Midwifery groups (pregnancy, labour, birth, and early newborn care information)
  • Newborn screening laboratories
  • Prenatal screening and newborn screening follow-up clinics

BORN Ontario’s Data Analysis & Research Team (DART) is responsible for all scientific and reporting activities as well as use of BORN Information System (BIS) data for data requests, data management, data quality, research and knowledge translation, Maternal Newborn Dashboard, and reporting. This group consists of a Scientific Manager who leads a talented group of 15 individuals. The team includes: 

  • Coordinators
  • Analysts
  • Epidemiologists
  • Knowledge Translation Specialist
  • Data Quality Specialist
  • Screening Specialist
  • Reporting Analyst
  • Students

The DART Team works in close collaboration with BORN Coordinators, the Technical Team, and the Privacy Team for all tasks related to data releases. If you have any questions please contact DART.

Data is collected through a number of mechanisms including manual data entry and automated extraction and uploads from health record systems, where available.

Data Quality
The BORN data quality framework and associated data quality activities can be found here.
Data Dictionary
The online BORN data dictionary includes data elements, definitions and associated pick list values available for legacy and BIS data sets.
Data Requests
Submit BORN data requests to support performance measurement, quality improvement, health policy work, surveillance, and research here.